Date of Award

8-16-2024

Document Type

Open Access Thesis

Department

Genetic Counseling

First Advisor

Crystal Hill-Chapman

Abstract

Prenatal and cancer genetic tests are recommended by many professional medical organizations. Previous studies have shown that autistic adults have a negative opinion towards genetic testing for autism but have not explored if this sentiment is shared for other types of genetic testing. We used a descriptive, web-based survey of autistic adults to assess their attitudes towards prenatal and cancer genetic testing (n=36). Our data showed that overall attitudes towards prenatal and cancer genetic testing are positive. Notably, participants had slightly more positive attitudes towards prenatal genetic testing related to neurodevelopmental disorders when compared to testing for disorders primarily affecting physical health. Free response answers suggested concern for a eugenics movement related to neurodevelopmental disabilities. Overall, autistic adults have a more positive attitude towards prenatal and cancer genetic testing compared to genetic testing specifically for autism. Future research should continue to explore the autistic adult perspective on genetic testing, as this research suggests a nuanced view.

Rights

© 2024, Robin Lisa Urban

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