Non-Biological (Fictive Kin and Othermothers): Embracing the Need for a Culturally Appropriate Pedigree Nomenclature in African-American Families
Document Type
Article
Abstract
Although the Family Health History (FHH) is the most cost-effective tool in the staratification of disense risk, it is not designed to collect information from non-biological family members (NBFM). Significant NBFM, defined as "fictive kin and othermothers," tend to play a major role in the transmission of culture, health promotion, and decision-making; yet, their influence cannot be captured using the standard FHH. Participants attending the National Black Nurses Association (NBNA) 2012 genetic workshop were divided into groups to role-play FHH. All participants (N = 50) indicated difficulties with the standard FHH, ranking collection of sensitive data as the number 1 challenge. Consequently, a new symbol was developed with support from NBNA genetics workshop participants. Having such a symbol afforts an apportunity for inclusion of all NBFM to help guide risk-specific recommendations for disense management, prevention, and health promotion of common chronic diseases. This report will describe the process, presentation, and adoption of the symbol.
Digital Object Identifier (DOI)
Publication Info
Published in Journal of National Black Nurses' Association : JNBNA, Volume 25, Issue 2, 2014, pages 23-30.
APA Citation
Spruill, I. J., Coleman, B. L., Powell-Young, Y. M., Williams, T. H., & Magwood, G. (2014). Non-Biological (Fictive Kin and Othermothers): Embracing the Need for a Culturally Appropriate Pedigree Nomenclature in African-American Families. Journal of National Black Nurses’ Association : JNBNA, 25(2), 23. https://pmc.ncbi.nlm.nih.gov/articles/PMC4847537/
Rights
© 2014, Journal of National Black Nurses Association